About us
Our work helps children and young people with heart disease and their families live full and empowered lives, informed about their heart condition but not overwhelmed by it.
There are around 4,000 children and young people living with heart conditions in NI.
To support children, young people, and their families affected by heart disease in Northern Ireland.
Charity information
Children’s Heartbeat Trust has been working since 1984 to provide practical, emotional, and financial support to children and young people living with heart disease and their families. We offer dedicated youth and family support services for each stage of a heart warrior’s experience.
Alongside this we undertake and support research, and campaign for the voices of children, young people, and their families to be at the heart of all congenital cardiac services.
A society that provides high-quality and inclusive clinical, practical, and emotional support for heart families at each stage of their journey.
Our values
Professional
From the Board of Directors through to our staff team and with our volunteers, we will act professionally and always with integrity at our core. We will do nothing to compromise our reputation as a trusted partner in supporting heart families at their point of need.
Heart family focused
We are passionate about and dedicated to supporting our families, and we will do everything we can to provide them with emotional and practical support.
Challenge and influence
We are committed to delivering the highest possible standards of care and support for our families. Within CHT, we will strive to offer high-quality support, and in the wider environment, we will campaign, lobby and collaborate to promote excellent service standards for our families.
Respect and inclusion
Compassion, dignity and respect are at the core of everything we do.
Partners in care
We will be at the centre of decision-making that affects heart families. We will engage in co-design, collaborate on initiatives, and play constructive roles as partners in care.
The difference we make
200
1/3
£1 > £8
£2,450m
135
119
£110,400
200
100%
1st
12
4
26
9
119
Meet the team
We are a small team here at Children’s Heartbeat Trust, but our passion for working with heart families across Northern Ireland is HUGE, and we are very proud of our work’s positive impact.
Governance
Children’s Heartbeat Trust is committed to ensuring best practice, transparency and accountability in governance and management.
Annual reports
We are delighted to share Children’s Heartbeat Trust Annual Impact Report for 2024/2025.
This report celebrates a truly remarkable year of community, care, and meaningful progress in supporting children with congenital heart disease and their families across Northern Ireland.
Through heartfelt stories, key achievements, and powerful data, we invite you to explore and celebrate the impact made possible by the dedication of our families, volunteers, staff, and generous supporters.
We want to say a huge thank you to everyone who supports us. Without you, our work wouldn’t be possible.
Privacy Policy
At Children’s Heartbeat Trust, we are committed to protecting and respecting your privacy. We have recently updated our Privacy Policy, which explains when and why we collect personal information, how we use it, and how we keep it secure.
Our strategic plans
Working towards a brighter future for heart families.
We work to support children, young people and their families by listening and putting in place practical services that will help. Our strategies and plans are driven by engagement with heart families and a determination to improve clinical, practical and emotional support at each stage of their journey. Read our strategic plan for 2023–2027 to learn more.
Get involved
Make a difference in the lives of heart families! Whether you’d like to fundraise, volunteer, or become a corporate partner, there are so many ways to get involved with CHT.
News and community
Stay connected with everything happening at Children’s Heartbeat Trust—from heart families’ inspiring stories to updates on our programmes and upcoming events.