Living with CHD
Receiving a diagnosis that your child has a heart condition can feel overwhelming, but you are not alone. We provide practical advice, helpful information, and support tailored to heart families. Each page addresses specific aspects of living with CHD, offering you the knowledge and confidence to navigate this journey with your heart warrior. Explore the links to find the support you need.
Learn about different types of heart conditions, including congenital, acquired, and inherited heart diseases. This section also provides information about pacemakers and other treatments.
Find guidance on financial support, including benefits, tax credits, and specialised schemes like the Family Fund Mobility Support, which helps families meet mobility needs.
Navigate school life with confidence. This section includes tips for preparing schools, factsheets to share with teachers, and resources to support your child’s mental health and integration into school life.
Plan your family holidays with our travel tips, medication advice, and a curated list of travel insurance providers to ensure you’re covered for any eventuality.
Discover how physical activity can benefit children with heart conditions and learn how to tailor exercise plans based on your child’s needs with guidance from cardiologists.
Understand the importance of good dental hygiene to prevent infections like infective endocarditis and find tips for maintaining your child’s oral health.
Access our lending library, sensory equipment, and Heart Books to support your family’s journey. These resources are designed to provide comfort, education, and a sense of community.
Get involved
Make a difference in the lives of heart families! Whether you’d like to fundraise, volunteer, or become a corporate partner, there are so many ways to get involved with Children’s Heartbeat Trust.
News and community
Stay connected with everything happening at Children’s Heartbeat Trust—from heart families’ inspiring stories to updates on our programmes and upcoming events.